Intersex and Disorders of Sex Development (DSD) are two terms used to describe those born with sex characteristics (i.e., chromosomes, gonads, genitals) that do not fit the typical definitions of male or female bodies. It is estimated that one out of every 2 000 people is born with invisible or visible intersex/DSD traits. But for many, intersex/DSD is less about anatomy and more about experience. “For me, intersex refers to the lived experience of the sociocultural consequences of being born with a body that does not fit within the normative definitions of ‘man’ and ‘woman’,” says noted human rights activist Miriam van der Have. Unfortunately, for many intersex people, this experience is one full of potentially harmful surgical procedures, stigmatisation, discrimination and social exclusion. There is a pressing need for research that highlights the experiences, understandings and views of intersex and DSD people within a European context.” With the support of the EUICIT project, undertaken through funding from the Marie Skłodowska-Curie Actions programme, Monro, along with Daniela Crocetti and Tray Yeadon-Lee, conducted innovative research on the intersex experience – research that could help decision makers protect this long-marginalised population better.